Special Needs/Advocacy

As the mom of a child with special needs I feel compelled to share a little of my experience in this arena, and to give those of you who may need it some information on supports that are available to you.

My son Hank was born on May 16, 1990 with gorgeous red hair, a strong, loving spirit, and something called 5QMinus Syndrome.

I lay on a hospital bed having just given birth with a neonatologist explaining chromosomes to me.  I just wanted to hold my baby.

Fast forward twenty-nine years to my still gorgeous red-head who, along with his strong and loving spirit is funny, really really smart, uses a wheelchair and augmentative communication (FC for those of you in the know :)), and is the complete and total light of my life.

I welcome and invite you to let me share with you my experiences…from living in school with Hank for many years so that he could remain in inclusion and not fall through the cracks, to discovering and utilizing a variety of non-traditional therapy’s including Feldenkrais and Young Living Essential Oils, and a very successful home-based business with Young Living, that gives me the flexibility that I need to stay present for my son in order to address all of his needs. This is a blessing in and of itself!

I am including in this page some of the agency’s that have helped us over the years either in the past or currently or both.  These are all in the Syracuse, NY area.  If you live outside of this area and are having trouble getting the supports that you need I would be happy to brainstorm with you so that you can find appropriate support for yourself and your child or children.

I will close this page with the following quote from Martin Luther King…”You don’t have to see the whole staircase…just take the first step.”

Wishing you many, many blessings as you journey with your precious, precious present.

Maureen

Exceptional Family Resources              Arise
315-478-1462                                   315-472-3171
www.contactefr.org                            www.ariseinc.org  
                                    

Access CNY                                      Jowonio School
315-455-7591                                 315-445-4010 www.jowonio.org
https://www.accesscny.org

Advocates Incorporated                     
315-469-9931                                     
www.advocatesincorporated.org         
                                                    

E.John Gavras Center

182 North Street

Auburn, NY 13021

http://www.gavrascenter.com

 

 

Institute on Communication and Inclusion

230 Hungington Hall

Syracuse, NY 13244

www.soe.syr.edu

{ 10 comments… read them below or add one }

Maryann Murphy September 25, 2012 at 9:27 am

Thank you for sharing. Not to many people in your position are so gracious. Your article was very poignant and understandable. It helped me to understand very clearly. Thank you for your help.

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admin December 9, 2012 at 1:51 am

You are most welcome Maryann, and thank you for reading it and responding. 🙂 Maureen

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Judith Ann Mcdermott October 17, 2012 at 2:34 am

m very happy to see your article. Thanks so much and i am taking a look forward to contact you. Will you kindly drop me a mail?

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admin December 9, 2012 at 1:41 am

Hi Judith…I’m happy to hear that you found my article helpful. I’m not sure which part of my sight is of interest to you, but if you’d like to drop me a line I’d be more than happy to continue our communication. You can reach me directly at maureen777@mac.com. Warmly! Maureen

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Aan November 20, 2012 at 7:14 pm

I began having these thouhgts about women (and myself) several years ago. The more “accomplished” I became, the unhappier I became. Until a serious depression hit me over the head like a 9 ton hammer. While I am all for “a woman can do anything” world, it has left me wondering if biologically, it’s just not what many of us are cut out for. And now, there is an expectation of being “out there” working hard, earning more, having more crap, blah blah blah. Maybe women who ran the home and raised their kids were happier back in the day than we ever believed. Deep thouhgts. :/

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admin December 9, 2012 at 1:50 am

Dear Aan,
I certainly can relate to your feelings and for me it really has been all about finding balance with it all. Because I was blessed to be introduced to Young Living Essential Oils, I’ve been able to build a very successful business while keeping my son’s well being first and foremost. Young Living has given us both beautiful health, and because it’s my own business and I can work so much from home and create my own schedule. I have really worked part time and now enjoy more than full time pay.
So I think one of the reasons I am happy is because “running the home and raising the kids” has continued to be my primary job…and who can beat that?
Thanks so much for your comment Aan! Maureen

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Maureen Foster February 12, 2013 at 9:18 pm

Maureen, you are such an inspiration. I don’t know if I have shared this with you or not but my oldest boy is diagnosed with tourette’s syndrome and all that it entails, adhd, LD, OCD, and behavioral issues. I would so love to see what your advice would be for oils regarding Luke’s needs. I hate having him on ADHD meds….. and the fact of the matter is … is that I think they, while slowing him down are having too many side effects. Work and kids… forever feeling guilty. Thank you so much for sharing yourself and Hank– it means more than you know. Moe.

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admin February 14, 2013 at 1:08 am

Hi Moe,
Thank you for sharing this with me and for your beautiful and kind words.
The first oils that come to mind are Peace and Calming and Vetiver.
is there a time when we can have a conversation about this?
Many, many blessings!
Maureen

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Kathy Kouwe March 1, 2013 at 4:34 am

Hi Moe, Your web page, pictures, story, ebook, ALL of it is AWESOME! I am so proud and honored to know you and have your for my friend. YL has brought us together along with many more wonderful people. You surely are an inspiration to so many.
Thank you for being YOU! Much Love, Kathy

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admin March 2, 2013 at 3:17 pm

Thank you so much Kathy for these words. You have been such an incredibly positive influence on my life and I am so very, very grateful for you.
Much love right back to you!

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